It’s Friday one day closer to the weekend and wow what a week it’s been!!! I’m excited to share it with you. So let’s get to it shall we? I’m so happy and honoured to be co-hosting Friday’s Feats and Fails with the awesome Ash from www.morethancheeseandbeer. This is a new adventure for me so I feel giddy with excitement. ???
FEAT-Amazing Grace
My beautiful cousin brought her baby into the world and I haven’t stopped crying since! Amazing Grace was diagnosed in utero as having mosaic triploidy. According to Wikipedia.org research Triploid syndrome is an extremely rare chromosomal disorder. Individuals with triploid syndrome have three of every chromosome, i.e. a total of sixty-nine rather than the normal forty-six chromosomes. There are only sixty recorded cases across the world. Thanks to the research I found on www.mommiesofmiracles.com I’m understanding a lot more. These children are blessings, and although there genetically different abled, they are beautiful gifts to the world.

A Mother’s Love ?

A Father’s Love ❤️
Amazing Grace is being tested and evaluated in preparation to going home! She’s classified as a strong baby, despite the disorders and her early arrival of eight days before her due date. The amount of love and prayers that are surrounding Grace and her parents is incredible! Thanks to Krista at Love by Krista Evans Photography 12,000 people have seen my family’s pictures. To me that means that 12,000 people are joining in prayer power! You can view Krista’s amazing body of work here:
https://www.facebook.com/lovebykristaevansphotography
The love, pride, and powerful energy emanating from this family fills my heart to the brim. ?
FAIL
I’ve been keeping as positive as I can considering how precious life really is. And my own son has to undergo genetic testing for Fragile X and ASD. According to Wikipedia.org Fragile X is a genetic syndrome. Nearly half of all children with fragile X syndrome meet the criteria for a diagnosis of autism.[1] It is an inherited cause of intellectual disability especially among boys. It results in a spectrum of intellectual disabilities ranging from mild to severe as well as physical characteristics. I’ve had my moments when I’ve dissolved into tears, yelled, cursed, and locked myself away in my pity party of one.
My incredible family has shown me I can have those moments but I just can’t unpack and live there. So other than not cleaning since last weekend, not keeping up with folding my laundry as that relentless bitch is owning me. I’ve been enjoying the sunshine, adventuring with my kids, and counting my blessings. And really appreciating the miracles in life like Amazing Grace’s journey with her phenomenal parents. The strength they’ve shown has been remarkable. In my cousins words to prepare for a life half way through pregnancy, then a possible death, back to preparing for her baby’s life is an extraordinary blessing. I know God will continue to watch over and bless them as they are all miracles of the heart. ?

Amazing Grace.?
My Captain’s hockey play off round ended for him last Saturday. It was a disappointing loss with some questionable referee calls that ended in a 2-1 loss. It was an exciting game, but I’ll be honest and say this part of being a hockey Mom really sucks. It was so hard to see those disappointed expressions on those sweet children’s faces. They played a great game though and they still have their practices, parents against the kids game, and windup party to look forward too. It was Father son time the next day as my husband took our Captain to work. They both looked so handsome as they dressed up in a shirt and tie. I haven’t seen my son dressed up since his first communion last year. It struck me how fast he’s growing up! I’m so proud of his accomplishments on and off the ice. ❤️

I have so much pride for my Captain and his team. ?

“Thank you for my happy Mommy.”
That’s my Friday’s Feats and Fails how’s your week been?

This is going to be an amazing weekend of watching the currents and the classics. ??
It’s link up time! Don’t mind the HTML code I couldn’t convert it back to text just click on the link below that say inlinkz. ?
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